CD
ProgramLong-term health outcomes of people living with spina bifida
Funds continued data collection on spina bifida patients and a study testing a urology care protocol for young children.
About
Spina bifida is a birth defect affecting the spine, and its most serious form, myelomeningocele, can also damage a child's urinary and kidney systems as they grow. Doctors still lack solid long-term data on how people with spina bifida fare over decades, and there's no settled, tested protocol yet for protecting a young child's kidneys while the condition is managed.
This cooperative agreement fu…
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