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Funder · Foundation

Cystinosis Research Foundation

Funds cystinosis research, treatment access, and patient support to advance cures for this rare genetic disease.

Annual funding$2M
Programs2
Active grants0
Total grants2

The Cystinosis Research Foundation (CRF) is a U.S. 501(c)(3) foundation founded in 2003 by Nancy and Jeff Stack in honor of their daughter Natalie. Based in Irvine, California, it backs research aimed at better treatments and a cure for cystinosis, a rare lysosomal storage disease, and it reports roughly $2 million a year in research and fellowship support.

Its active routes are the CRF Research

Last verified: 28 May 2026Source: www.cystinosisresearch.org